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Bipolar Kid: Our Family’s Tale part 3

by Milehimama on August 11, 2010

in Bipolar,Mr R,Parenting,Real Food

In part 1, described the road to a diagnosis of bipolar.  In part 2, I told you how we chose to medicate and educate Mr R.

In part 3, I’ll describe our current treatment plan, using diet and supplements and avoiding prescription medication.  Please note, this is our story.  Do not suddenly stop any prescribed medications or therapies based on an internet blog post!

I had been searching for answers for Mr. R  for years. Through lots of research, I settled on a plan. At first, I banned sugar. Turns out the real problem was the fake food dyes that sugary kid treats contained. Now he can eat sugar – as long as it’s in something natural.

Now, his diet is no artificial food dyes (Red #40, Yellow #5, Blue Lake, etc.). No MSG. No petroleum based preservatives (BHT/BHA/TBHQ). They put those things in the bag that keeps cereal fresh! Should we really eat these?

No artificial sweeteners. I use Equal to kill fire ant mounds in my yard. Again, can this possibly be healthy? I’ve got a ton of links, and books, that helped me come to this conclusion – you are what you eat, and what you don’t eat.  You’ve probably noticed my interest in “real food”.

(Side effects of food additives)

(Links to studies on apartame)

(Links to studies on MSG)

(More on MSG)

(Anecdotal evidence, plus recipes and resources)

(The Straight Dope on MSG) (this is like Snopes.com)

(Studies on BHA/BHT/TBHQ)

Next, I treated him for a condition known as Pyroluria. It’s standard to treat BP people in the Netherlands for this, but in America, big Pharma can’t make money off it so there aren’t many studies and it’s considered “alternative”.  I’m down on the pharmaceutical industry and the FDA, and my skepticism about government groups and lobbying organization grows everyday.

Pyroluria is a vitamin deficiency – like scurvy or rickets. Specifically, it is a B vitamin deficiency, and usually zinc too (B vitamins and zinc are linked in their metabolizing process). Often, there is a copper toxicity. Too much copper displaces the zinc. There is a simple urine test for this, but it costs $70-$100 and I haven’t had it done.  In one study, interestingly, almost 7o% of schizophrenic patients, and 80% of alcoholics were diagnosed with pyroluria, and their symptoms improved once they started taking the correct vitamins.  Alcoholism and bipolar are well known to be co-morbid, that is, appearing together, and the current theory is that many bipolar people use alcohol to self medicate.

(Pyroluria)

(Treatment history and results)

(Natural treatments for pyroluria)

We also supplement with omega-3 fatty acids. Even American studies have shown that in addition to heart health, these important nutrients increase focus, help alleviate depression, and stabilize mood.

Sometimes I throw in some acidophilus – yeah, the stuff in yogurt that you take so you don’t get a yeast infection – to cure his burpy/fart problem.   Now that he’s been more or less off the stuff he reacts to, we don’t need it so much.

Now, the kid, as I mentioned, would probably die before swallowing a pill, so I searched high and low and found chewables without food dyes in them for the B vitamins and Zinc, and he takes Coromega, which is like a spoonful of orange pudding in a little packet. Acidophilus is naturally chewable.

We also have added the supplements of inositol and choline, which help with mood stability, anxiety, and just seem to help him have a more even keel.

That’s the story of our journey into, and out of psych meds.

We are successfully treating bipolar disorder through nutrition. Mr R can read at grade level now, and is in a mainstream classroom.  He loves school and gets good reports and progress reports. He knows many sounds for A - apple, father, ate, and the silent one – read (past tense). He is teaching himself cursive (so he can read my notes to his teacher, I suspect!) and also teaching himself to draw from books and online tutorials.

He’s a regular kid again! Thanks be to God.

Books that helped tremendously:

Head

The Explosive Child, by Dr. Ross Greene

The Myth of the ADD Child:50 Ways to Improve Your Child’s Behavior and Attention Span Without Drugs, Labels, or Coercion, by Thomas Armstrong

The New Strong Willed Child, Dr. James Dobson (didn’t help with dear son, but sure did for brother #2 and sister #3!);

The Difficult Child, by Dr. Stanley Turecki

Transforming the Difficult Child, The Nurtured Heart Approach by Howard Glasser I was truly desperate to try this approach, but something had to give. I thought it was a miracle short term, we used it for 3 months when I was home alone and husband was out of state. It helped us “reset” our expectations, and our other discipline works very well now

Heart

No Greater Love, by Mother Teresa

The Imitation of Christ, by Thomas A Kempis

Food and Diet

Why Your Child Is Hyperactive, by Dr. Ben Feingold

The Joy of Cooking, by Irma Rombauer. The old one, not the new 2006 one. The new one uses things like cream of mushroom soup – can’t do that if you’re avoiding MSG! The old one tells you how to make everything from scratch. I got mine new in 1997.

Eating Well for Optimum Health, Dr. Andrew

Linking up!

{ 10 comments… read them below or add one }

DebbieQ August 12, 2010 at 6:28 am

So glad! I can tell you, just as an adult, that when I got myself off of anything with artificial sweeteners in it my health improved. And as I move farther away from highly processed foods as much as possible I feel better and better.

Sherry C August 12, 2010 at 4:03 pm

A+ for you for your medicate and educate approach! I’m making a list from this post on things to try for my ADHD child. We’ve been using OmegaBrite instead of Coromega b/c the Coromega contains Sodium Benzoate, which is supposed to cause hyperactivity. Have you had any issues with this using the Coromega? May I ask which chewable supplements (Vit B and Zinc) have you found?

One more question…do you make the dietary changes for your whole family or just this particular child? I’m having a hard time with this part of it, especially when eating away from home. I want to have everyone the same (for convenience and for health benefits) but my husband does not think it is necessary.

Milehimama August 12, 2010 at 4:55 pm

Sherry, I really can’t recommend the “Myth of the ADD Child” book enough. It has 50 non-invasive things to try listed in the second half. Also Dr. Feingold’s book “Why Your Child Is Hyperactive” is about how food additives cause ADHD behaviors. http://www.feingold.org/

For Vit. B, we actually use a multivitamin. Tall Tree Chewable Multivitamin provides a lot of the Vit. B (more than the RDA) and doesn’t have copper. We use either RhinoZinc or ZincKing for zinc. I get the Coromega and Tall Tree from LuckyVitamin.com – best prices I’ve found so far, anywhere.

We started making them just for R but it’s encompassed the whole family. Sometimes the other kids will have something with colors, etc. at friend’s houses or I let them buy 1 food item a week with their allowance (like Skittles or something) and I only strictly enforce the no colors with R. But I don’t buy anything with colors on a regular basis, so all of our groceries are MSG, and color free. For example, I only buy dye free pickles (Boar’s Head), don’t ever buy koolaid, make lemonade from lemon juice and sugar, make our own or buy MSG free salad dressings, etc.

Husband drinks Diet Dr. Pepper and diet Lipton teas, and he also tends to eat MSG foods.

Milehimama August 12, 2010 at 5:04 pm

I haven’t ever noticed a reaction from sodium benzoate. I don’t think he reacts to BHT, either but we eliminate just to be safe (and really, that’s healthier anyway). TBHQ tends to make him whiney though.

More on the diet for the whole family: it is a lot easier if banned foods just aren’t around. My son would get into anything that was contraband – I literally need to not have it in the house. But, if my daughter goes to a birthday party, I’m not going to stress about whether she’ll eat cake. Dye free/MSG free/etc. is our “default” mode just because it is so much easier than constantly checking labels, considering who I am cooking for, trying to remember if the leftovers were “compliant” or not.

Eating away from home is hard. We don’t eat out all that often, and I try to educate myself ahead of time. For fast food, we tend to eat at Arby’s (no Arby Q sauce, colors!) because I watched Food Inc and can’t stomach burgers anymore, LOL. We do tend to eat buffet for restaurants, and I just have gotten a feel for what foods might cause a problem (Anything with canned cheese, for example. Things that are the wrong color or too vibrantly colored. Sauces and condiments. BBQ sauce. Processed meats, like pepperoni or chicken nuggets. Other places we eat out are chains, because you can look up their menus and nutrition info ahead of time online, so I can plan which places will be the best bet for us. And I have a feel for foods that are usually pretty safe – french fries (not seasoned), hamburgers, and so on.

luckygagal August 21, 2010 at 10:12 am

Have you looked into the Feingold Program? http://www.feingold.org It is a non-profit organization that has volunteers who research products to find out about artificial colors, flavors, preservatives, etc. It has been a great help to my family.

Milehimama August 21, 2010 at 11:46 am

Yes, and I highly recommend his book “Why Your Child is Hyperactive”. We never signed up for the program but Feingold gave us a good start.

Sarah October 7, 2010 at 3:09 pm

This is amazing! Thank you so much for writing this! I think it’s fantastic to see a parent take charge and do this for their kid!

Those dyes are so problematic for so many kids (and probably adults too). I have one friend whose two middle kids both have to have colonoscopies and endoscopies. Both are sensitive to dyes, so she has reduced them, but they still eat a lot of additives and processed food. She feels bad that they can’t have “the good stuff”! Oy vey!

And, my neighbor, as you read, has chosen to medicate and make no diet changes at all, because it is “too hard”.

Nicki Woo June 21, 2011 at 8:45 pm

I am so proud of you guys. You. Your son. Your family. I already looked up to you, and now my hat is forever off to you. Much love.

Marin September 13, 2011 at 5:05 am

Thanks for this post . . . changes to diet can make a HUGE difference.

Last year, my husband took an assignment overseas. We moved with our two kids, ages 6 and 9 to Central Europe. The first few months went really well – other than the normal bumps of a move, the kids transitioned beautifully. We were thrilled. They loved their new school. We loved our new church. All was well. Then we returned after spending Christmas in the States, and my 6 year old (almost 7) son changed. I mean really changed.

I have to preface this by saying that DS is very sensitive guy, who since birth, has always been a bit on the grumpy side. He has always had a glass “half-empty” type of perspective on things. Not sure where such cynicism comes from (his sister is the complete opposite), but we have always sort of attributed it to his being a sensitive soul.

And, despite sort of having a “Debbie Downer” attitude, he really had always been a sweet little boy. His kindergarten teacher, the one who was rumored to hate boys, LOVED him. He was never a problem – a quiet, polite student who always did what he was told.

And all of a sudden, he was a DEFIANT, OBSTINATE, ANGER FILLED CHILD . I now had a first grader with the sulky, defiant attiude of a 16 year old and the tantrums of a two year old. The littlest things set him off into a major rage (like I put the wrong cereal in his bowl). Embarrasing outbursts in public places became common. It was contantly walking on eggshells with him. It was a nightmare to get him to school: he didn’t like the shirt I picked out, or the pants, or the socks. He hated everybody and everything.

I wracked my brain trying to figure out what had caused such a personality change.

I spent hours researching the internet. He seemed to either be bi-polar, or have oppositional defiance disorder. I was scared.

I talked to the school psychologist first. They saw none of this behavior at school – he was the same sweet little boy that I used to know. But as soon as I picked him up at school, the tyrant began. I HATE YOU. I AM GOING TO KILL YOU. I AM GOING TO THROW MYSELF IN FRONT OF THIS CAR. It was like he held all this hate in for six hours, and then it was set free. But, the school psychologist assured me, if it was a real problem, they would see it at school. Perhaps a little more discipline at home was needed?

And we did try some new discipline methods, hoping that would curb some of the outbursts. Specific consequeces for specific behaviors, more hugging and patience on our end. But nothing seemed to work. My husband was at the end of his rope. We seriously considered an exorcism for him.

The strange thing about our son’s behavior was that it seem clustered. He wasn’t always demon boy. In fact, we would have stretches of our old son for days, sometimes weeks at a time. I tried to tie his mood swings to sickness, lack of sleep, anything, but I couldn’t seem to find any one common denominator.

We tried a another pyschologist, one outside the school. Her second visit came after a two week calm period. Maybe you two (meaning my husband and I) need to drink a little more wine (honestly, this was her advice).

Shortly thereafter, my brother and his wife and son visited. We did some traveling together, and my son’s demons returned in full force.

We ate out quite a bit when we traveled, and we often treated the kids to soda when eating out. The year before we moved overseas, we changed our diet to exclude articial flavors and colors, preservatives, and really tried to limit the sugar – my daughter has sensory issues, and this definitely seemed to help.

So, when we travelled, we lifted the ban and let them have soda with one meal. But the drink selection is limited here (no lemonade or chocolate milk), so I would let them have Coke, or more precisely, Diet Coke.

Now, I had heard that having too much diet soda was a bad thing, but this I thought was in moderation – a once in a while treat. I thought that Diet Coke was the better choice than its sugar-laden counterpart.

It wasn’t until my sister-in-law told me she did not allow her son to have diet pop, because the ingredient aspartame is dangerous and isn’t processed correctly in children, that I made a connection.

Could an ingredient approved by the FDA really be the source of my son’s demons? It seemed too simple to be true. But I did some research, and I was shocked. First of all, how did this chemical get approval for food use to begin with? Second, studies showed that a certain segment of the population reacted adversely (mood wise) to aspartame.

Looking back, we had done a lot of traveling from February to June, which meant we ate out quite a bit, meaning the kids most likely had diet soda in high frequency. I checked for products around the house to see if aspartame was lurking anywhere else. Oh yes, it was.

Before we moved from the US, I was hyper-vigilant over checking the ingredients for artificial colors, flavors and preservatives. But in our host country, most foods are without such ingredients (it is wonderful!), so when we did get a few items from the US, I just made sure their consumption was in very limited moderation. And when my husband brought back “normal” vitamins (with food coloring) from a trip to the States in January, not the ones I usually bought at Whole Foods, I decided that it was no big deal. Until, a few months later, when I realized aspartame was in them.

So, IMMEDIATELY, everyone was prohibited from anything with aspartame in it. We had three straight weeks of bliss (ok the normal kid stuff, but compared to how it had been, it was heaven!). Three weeks was probably the longest we had gone without the demons surfacing.

But then they surfaced. We were in the States on summer vacation, and I dropped my children at my in-laws so I could meet some friends for an early dinner. When I picked them up at around 8 pm, my son seemd fine, but then flew into a rage. And I mean a rage. It took 20 minutes to get him to leave. My father-in-law had to carry him kicking and screaming out to the car, and we could barely get him buckled into the car seat. I started driving and he threatened to throw himself out of the car. He threw his shoes at me. My daughter used all her might to keep her hand over the seat belt button, so he could not release himself. I pulled over.

What did you have at Grandma and Grandpa’s? I asked him. A sugar free popsicle, he told me. We suffered for 3 days with demons.

It has been six weeks since the popsicle incident. We have been demon free ALL of that time. PRAISE BE TO GOD!

So, there was a time that I would have dismissed such an idea – I had way too much confidence in the safety of our food items. My ignorance caused our family, especially my son, a lot of pain. I feel a lot of guilt. But now I can tell you that it is true – you are what you eat – so eat wisely!

Milehimama September 13, 2011 at 10:30 am

Wow Marin, thank you so much for sharing your story! Aspartame affects brain receptors and while it’s ok for *most* people, I know that some people are sensitive to it or don’t process it correctly. Same with MSG. Glad you found out what was wrong!

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